We know that a diagnosis of PD is difficult, but here are some ways to help you deal with your new life:
- Accept the fact that you will not be like you were before you were diagnosed, and you will have to learn to make changes, but that you can still live a full functioning lifestyle.
- Gain as much knowledge about the disease as you can by researching the Internet, newspapers, magazines, and/or scientific journals. This way, you will understand what to expect, learn about any new treatments, and be able to explain your condition to family and friends. Understanding your body will be of great benefit in helping you cope with the disease.
- Be involved in your health care options. Review literature and talk to others about neurologists and physicians in order to get the best treatment you deserve.
- Seek out support groups and maintain a strong system of encouragement at home and in the community. This will help you get through the difficult or frustrating days you may experience with this disease.
- Make adjustments to your activities and hobbies. For example, if you enjoy playing the guitar or piano, try to get out and experience live music at concerts as much as possible. It won’t replace playing an instrument, but you can still maintain a strong appreciation of music.
- Assess your capabilities at work. Ask yourself what parts of your job have become difficult and if there is a way to make it easier for you. This could include napping at lunch or breaking down your duties into simple step-by-step tasks.
- Maintain open communication with friends and family. Allow those close to you time to discuss your condition and the feelings experienced by everyone involved. Try to create and open door mentality among everyone, and check in with your loved ones often to make sure everyone is doing all right.
- Stay as positive and active/independent as possible. This way, you won’t feel like your loved ones are helping because they pity your condition.
- Allow your loved ones to see you even at your low points, so that they may experience what you go through on your “off” days. They will have more appreciation for the time they get with you when you are in a better state.
|
