Resources

Links

American Parkinson Disease Association, Inc www.apdaparkinson.org Provides information on Parkinson’s disease and APDA’s services and activities. Supplies listings of APDA Information & Referral Centers throughout the US, as well as available Parkinson’s disease literature.

APDA Young Parkinson Web site www.youngparkinsons.org Offers information and available services specifically for people with Young Onset Parkinson’s Disease.

World Parkinson Disease Association www.wpda.org Provides World Parkinson Disease news and is updated weekly with a listing of research.

WE MOVE (Worldwide Education and Awareness for Movement Disorders) www.wemove.org Increases awareness of movement disorders among healthcare professionals and the public. Provides useful information on movement disorders and treatment options.

PD Index: A Directory of Parkinson's Disease Information on the Internet www.pdindex.org Provides a directory of information about PD and useful online resources.

The Parkinson's Disease Information Exchange Network Online www.parkinsons-information-exchange-network-online.com Provides a wide variety of articles and writings from different sources on many different aspects of Parkinson’s disease. Allows you to search for general content as well as information about medications through a drug database.

National Institute of Neurological Disorders and Stroke www.ninds.nih.gov
Provides a large amount o of information on neurological disorders and research from a governmental perspective.

Parkinson’s Action Network www.parkinsonsaction.org Increases awareness about Parkinson’s disease and political advocacy.

Caregiver Information

National Family Caregivers Association www.nfcacares.org Educates and supports the millions of Americans who care for chronically ill loved ones.

National Alliance for Caregiving www.caregiver.com Provides a variety of information and links to other caregiver sites.

The National Institute on Aging Information Center www.nia.nih.gov Provides information on aging along with resources for clinical trials, workshops, conferences, and meetings.

Well Spouse Association www.wellspouse.org Provides information about a support organization for caregivers.

Senior and Special Care

New Lifestyles Online www.newlifestyles.com Provides information on senior living and care options, including independent retirement communities, assisted living, nursing homes, Alzheimer’s care, and home or hospice care.

Eldercare Locator www.eldercare.gov Connects older Americans and their caregivers with sources of information on senior services. Links those who need assistance with state and local area agencies on aging and community-based organizations.

Hospice Foundation of America www.hospicefoundation.org Provides hospice care information for professionals as well as families about issues relating to caregiving, terminal illness, loss, and bereavement.

Mailing Lists

The Parkinson's Community on the Internet, PARKINSN james.parkinsons.org.uk/community.htm Provides a chat forum and support group for PWP’s, caregivers, and physicians.

The Parkinson's Community on the Internet, CARE james.parkinsons.org.uk/Lists/care.htm
Offers online support and mailing list for caregivers.

Parkinson's Disease News www.pdnews.org Provides e-mail postings of relevant news items and articles of interest to the Parkinson's community.

Medical Search Engines

Web MD www.webmd.com Provides basic information, written for the layperson, on health-related questions.

Medscape www.medscape.compx/urlinfo Provides scientific abstracts and links for health-related questions.

Online Medical Dictionary cancerweb.ncl.ac.uk/omd Provides useful definitions of medical terminology.

Research Engines

National Institute of Health www.nih.gov Provides health information, grants/funding opportunities, news, events, and scientific resources.

National Institutes of Health - National Center for Complementary and Alternative Medicine (NCCAM) http://nccam.nih.gov Provides information on this national Center as well as the types of complementary and alternative medicine options being studied.

National Library of Medicine (Pubmed) www.ncbi.nlm.nih.goventrez/query.fcgi Provides database of scientific articles. Most abstracts and some full text are available online.

Advancing Parkinson’s Therapies www.pdtrials.org Helps people easily locate and understand Parkinson's disease clinical trials.

Parkinson Study Group www.parkinson-study-group.org Provides information on existing research studies.

Veritas Medicine www.veritasmedicine.com Provides a source to search for clinical trials available by geographic area. Medications Partnership for Prescription Assistance www.pparx.org
Assists qualifying PWP’s who lack prescription coverage to get the medicines they need through the public or private program that’s right for them For TN residents, please go to: www.pparxtn.org

National Institute of Health
www.nimh.nih.govpublicat/medicate.cfm#ptdep14
Provides listing of medications by trade name and generic name.

Pharmaceutical Research and Medications of America www.phrma.org Provides information on medicines, including a Directory of Prescription Drug Patient Assistance programs.

RxHope www.rxhope.com Provides more information on prescription drug assistance. Supported by Pharmaceutical and Research Manufacturers of America.

Epocrates www.epocrates.com Provides a free downloadable database of peer-reviewed drug information including offlabel indications.

Deep Brain Stimulation

Medtronic, Inc www.medtronic.com Provides information on how the device works and what it is useful for. Provides a listing of Deep Brain Stimulation Centers. Medtronic is the medical technology company that manufactures DBS devices.

Adaptive Equipment, Clothing, and Aids

North Coast Medical’s Functional Solutions www.beabletodo.com Provides an online catalogue featuring a variety of products that increase independence by making everyday activities easier and safer. Products include dressing aids, household helpers, adaptive eating utensils, exercise equipment, transfer devices, and more.

Fashion Ease Apparel www.fashionease.com Provides a resource for adaptive clothing. Sears Health and Wellness www.searshealthandwellness.com Provides a catalogue of adaptive equipment resources.